Tuesday, August 06, 2013

Odds and ends and Jon Bon Pony

First, an M-spike update: My June M-spike was 1.5 -- completely stable from the month before. In July, it actually went down to 1.2. This calls for a photo of Jon Bon Pony:


Next, I had another Myeloma Mom column published on the Myeloma Beacon web site at the end of July. If you missed it, you can find it here.

Finally, I've been asked to be a panelist in a call-in discussion about young adults with cancer. It's on Thursday (!!!) and I need to come up with some intelligent-sounding questions to ask. If you have any ideas for questions, please let me know! Here's a link to info about the discussion.

6 comments:

Nancy Brookhart said...

I'm not sure it's an intelligent question, but if it was me......
I would ask Why me? and then I would wonder Why not me?
That's probably not very helpful.

Carole Leigh said...

When I was first diagnosed with MM, I didn't ask "Why me?" and I haven't since, but I have thought a lot about, "Why not me?" I guess the answer is that no one is immune from accidents, catastrophic illnesses, problems and any number of serious difficulties in life.

Good luck on your panel discussion. I know from reading your blog that you will be a great contributor to this

Carole Leigh
Compelled CLarity caroleleighi.blogspot.com

Lovey said...

Karen, my mother had MM. I am a 5 year survivor (ASCT in 2009.) I worry tremendously about my siblings and my children. The info on MM familial connection is very murky. I'd ask about this issue. Lovey

Sunti Deale said...

Please ask about the high incidence of sudden femur fractures with the biophosphonate Zometa. I've been on Zometa since 2005 and on 7/16/2013 I suffered a sudden femur fracture of my right leg. I heard the crack and then I fell to the ground. I had simply taken a step when it happened. It was the most painful and traumatic injury I have ever experienced. I had had MRI's of both hips and CAT scans of my right femur and nothing showed up that would have indicated what was to happen days later. Both the surgeon and my Oncologist attributed the fracture to the Zometa. Please also ask if there is an alternative to Zometa. (sunti@sbcglobal.net)

Anonymous said...

Hi Karen , I am a 7 year survivor of stage 4 prostate Cancer, and I have not been here in a long while, I just wanted to say I was so glad to see you are doing well!

http://www.youtube.com/watch?v=IsRVJjKRYpo

Dan

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