Friday, September 21, 2012

Crazy times, crazy verbs

All right, I'm back. What's been going on? Well, my M-spike held steady again at 1.6. Thank you, Magical Bon Jovi Photo:

In the meantime, Jay changed jobs. That's good, but it also meant that we had to switch insurance companies. For the last couple years, the complex process of refilling my Revlimid every four weeks had become like a well-oiled machine. The nurses were on top of things. The pharmacy was on top of things. The drug company was on top of things. Then I go and do something crazy like switch insurance companies, and I'm locked in the nightmare of Crazy Revlimid Bureaucracy. I spent about two weeks making phone calls and going like this:



It all worked out in the end, and I have my bottle of Revlimid now, but I spent over a week off of it when I was supposed to be on it while we worked everything out. We'll see what happens to my M-spike next month. Dr. GPO said not to worry, because I'm already "heavily Revlimid-ed". Yeah, we're totally using Revlimid as a verb now, and I don't even care. That's how crazy everything got.

While all of this was going on, however, I was interviewed by the Cure Talk web site! This is the same web site that asked me to participate in the panel discussion last month. You can see my interview here

Cure Talk is having another myeloma panel on Sept. 25, and you can learn how to sign up to call in and listen here.  This time the expert is Dr. Paramiswaran Hari, who will be talking about relapsed, refractory, and high-risk multiple myeloma. I'm not going to be participating this time because it's at the time of day when I'm picking WCK up from school and then getting screamed at that spelling words are too hard  lovingly helping her with her spelling homework.